I can't believe that I forgot to take a picture of the hats this time.  I made 7 and mom made 2.  4 of them went to two people taking chemo with me.  The rest are there for others to take.  Mostly winter ones so they should go when the weather cools.
Chemo went well with the pic.  I get the supplies for it tonight and tomorrow a nurse comes to the house to change my dressing.  I slept through most of it today and now am still drowsy.
Met with the nutritionist while I was taking the chemo and got lots of hints on what to do.  Basically I have to take 6 small meals instead of big meals to give my stomach time to digest the food so that I don't get the pain any more.  She also told me to force myself to stay awake in the day so that I could sleep at night.  She said I could have naps but have to set my alarm so I don't sleep too long.  Hopefully I can do that but right now it is really hard to stay awake.  Have a good weekend all.

Proof that Wednesday night we made it past the end of Merivale  Rd from Ecolands.  We went further down too.

Well that might just be my last kayaking for the season unless we have a really nice October.  I got my pic in today and am not allowed to lift over 10 pounds with it.  My kayak is a little more than that and I can't get it up on the truck and off again with just my left arm.
The pic went in very easily.  It goes from the top of my right arm into the superior vena cava.  I hated 2nd year anatomy when I took it and using it now is even worse.  Translation it goes to the big vein that feeds the heart.  One cord comes out of my arm and just goes to one contraption that they stick the IV into.  Some people get it to split to two but mine is only one.  It is taped on my arm with an elastic bandage kinda thing around it and then I have a sleeve to put over it when I shower.  I have to go and get it flushed with saline once a week on the weeks that I do not have chemo... when it is not in use.  After they put it in using an ultrasound to see the beginning end... I had an xray of my chest to see that it ended up in the right place.  By the time I walked from the xray room back to the pic room..she had the xray up on her computer and said all was well.  She said in the old days they didn't even have the ultrasound machine to get the first part right.  She said the machine cost over 50K.  What a great investment.  Sure avoids a lot of poking around guessing if they are in the vein or not and now they can start it higher where they go deeper and into bigger veins that are better.
After that went to the volunteer meeting for the Ride the Rideau.  What a super organization.  They seem to be very well organized.  Almost 300 volunteers and over 700 riders.  Each rider has to raise 1,500.00 to participate so they will get a lot of money which is great.  I was shocked when I found out that only the first part from CE center to Earl Armstrong is blocked off to traffic and they will be on the road with cars the rest of the way.  It is started at the CE instead of Landsdowne this year so they are only going 98km.  It is still a long way but I think I will be able to do it next year.  Some of the riders this year have opted to ride back instead of taking the bus...WOW.
Thanks everyone who has sponsored me so far and those who said that they were but just haven't got around to it yet.  Here is the link again:
http://my.ohfoundation-fondationho.ca/personalPage.aspx?registrationID=1556419

Off to get some rest now since have to get up early to hopefully get chemo at 7:30... I am sure my counts will be ok... have had lots of rest since I started the new meds.  Til tomorrow.

Blood work done for this trip.  Pic tomorrow so had to do it old school today which was disastrous.  Poked around in my right arm until I winced so much in pain that she took it out... that was even with a butterfly needle and still couldn't get it in.  Looked around the left arm but no luck there either.  Finally went in the back of my hand which only gave two of the three viles and then it collapsed.  The lab is going to share the blood in the two so that she didn't have to poke me again.  I guess it is a good thing that I am getting the pic tomorrow or I would be not a happy camper on Friday.  Lets just hope that the blood was ok with the right levels for all of the tests.  Never a dull moment!

Slept until after 2 on Monday.  Not too sure about this new pill that I am taking.  It is supposed to help me sleep but until 2 is a bit much and then when I get up I am very weak and have no energy.  I am not in a haze but feeling exhausted is very weird.  It will definitely make me rest up for my blood work tomorrow but I am definitely going to ask about it on Friday.  I have 90 days worth which would take me almost through the radiation.  Maybe it just takes time for my body to get used to them.  I forced myself up today and cleaned all the washrooms which made me feel a little useful.  Oh well back to my swing.

Got in a kayak trip from Manotick to Kelly's for lunch and then back this morning.  The water was like glass when we started out.  The calm before the storm.  Went roller blading with Sparky when I got home.  We got home just before it started to rain.  Now to rest and work on some hats to take in on Friday.  Hope everyone is safe out of the storm.  Took the new medicine last night and I slept through the night and do not have the haze all day today.  Looks like they will work for now.  On line says they are very addictive so not sure about that part.....  til tomorrow...

Ride the Rideau:
I just got accepted as a volunteer and assigned my task for the Ride the Rideau Fundraiser for Cancer Research in Ottawa.  No I am not going to ride in it but as a goal I definitely want to be healthy enough to ride in it next year.  It is one of the few fund raisers out there that my weird kind of cancer will benefit from.  The riders start at Landsdowne Park and ride 100 km to Merrickville where they get something to eat and a bus ride back to Ottawa.  I will be at the finish line making sure that the riders know where they have to go and answer any questions.  With my physical limitations right now that job suits me best.  As a volunteer I can raise money as well.  The only thing is their website links are not set up to search for volunteers so you have know my URL to get to my page.  I have inserted the URL below if anybody would like to donate to cancer research in Ottawa.  You can put it on VISA or PAYPAL and it emails you one email with a confirmation and a second email with your tax receipt attached.  It goes to a good cause and it is a tax deduction too.  The ride is on Sept. 8th which should be a good week for me so I should be ok.  Thanks in advance to anyone who decides to make a donation.
This is the URL.  Just copy it and put it in your browser and follow the instructions.

http://my.ohfoundation-fondationho.ca/personalPage.aspx?registrationID=1556419

Thanks again.

Off to Port Elmsley to go to the Drive in.
Apt today went ok...
got drugs to sleep better
got referral for eating disorder/pain
got referral for hot flashes
got referral for follow up with actual surgeon
got referral to book apt with radiation dude
got referral for pic instead of port... less invasive

Essentially I sit and wait for the phone to ring to book an apt to see someone who might be able to take care of some of my problems.

Oh yeah for the no feeling in fingers and toes - lowering the dose of one of the two chemos that I get for the last 3 times.

No real solutions today so off to the drive in and stay over night in Smith Falls for a break.

Have a nice weekend all.